Spinraza number 5

"I have completed the 5th Spinrazy application and I hope it will be my last. Everything went well."

 Unfortunately, this bad period, thanks to Covid-19, also affects Spinrazy's application in some countries. Patients put it aside. We don't even want to imagine this. Every day we hope the situation improves. Meanwhile, even Maxík had rather delayed his sleep laboratory, which was needed for further benefits. For the time being, his doctors had just taken blood to check it, and he had a background test. That's another reason to fight for gene therapy!