Maxík is a cheerful boy with a rare disease
who received Zolgensma gene therapy on 14 May 2020 as the first patient in the Czech Republic, at the Motol University Hospital.
At present, Maxík is honestly and daily rehabilitated in order to achieve the best results. THANK YOU for your incredible support!
"I was born on June 7, 2018 in Ostrava. My arrival in the world was fast and hassle free. I got my beautiful name after my uncle, who unfortunately is no longer among us. Dad liked him very much. Everything indicated that I was a healthy baby ...read more
What is SMA?
Spinal muscular atrophy (SMA) belongs to the group of hereditary diseases affecting motoneuron. As a result of this disease, the muscles are weakened and over time muscle fibers are waning - the so-called muscles atrophy. This disease does not affect the intellect. SMA is a rare disease, but it is also one of the leading causes of death in early childhood.
What is new with us?
I have completed the 5th Spinrazy application and I hope it will be my last. Everything went well.