Maxík is a cheerful boy with a rare disease
THANK YOU for your incredible support and for working together to work a miracle! Moreover, in such a short time.
Excellent news that the application of Zolgensma gene therapy in the Motol Hospital enabled us. If this is the maximum number of attempts on the screen and a contract will be written regarding the application. It would help during May.
Adámek, who has his 2nd birthday just 10 days after Maxík www.adamkovacesta.cz and Oliver www.nadejeprooliho.cz, will also need your support. These children also fight for gene therapy. More information can be found on their website.I want to support
"I was born on June 7, 2018 in Ostrava. My arrival in the world was fast and hassle free. I got my beautiful name after my uncle, who unfortunately is no longer among us. Dad liked him very much. Everything indicated that I was a healthy baby ...read more
What is SMA?
Spinal muscular atrophy (SMA) belongs to the group of hereditary diseases affecting motoneuron. As a result of this disease, the muscles are weakened and over time muscle fibers are waning - the so-called muscles atrophy. This disease does not affect the intellect. SMA is a rare disease, but it is also one of the leading causes of death in early childhood.
What is new with us?
I have completed the 5th Spinrazy application and I hope it will be my last. Everything went well.